While a number of states throughout the United States have developed systems such as Delaware’s Lifespan Respite Care Network, decease there has also been a growing federal initiative to establish federal legislation promoting such systems. Fortunately, the Lifespan Respite Care Act (PL 109-442) has been passed. It authorizes grants to promote state-wide coalitions to make quality respite available and accessible to family caregivers, regardless of age or disability.

Delaware is currently working with ARCH National Respite Coalition to promote increased funding through this act, so that ultimately all states, including Delaware, will have access to funds to keep programs such as the Delaware Lifespan Respite Network operational.

Additional Resources for Advocacy:

ADAPT is a national grass-roots community that organizes disability rights activists to engage in nonviolent direct action, including civil disobedience, to assure the civil and human rights of people with disabilities to live in freedom.

Phone: (302) 453-8537


The Americans with Disabilities Act of 1990 (ADA) prohibits discrimination and ensures equal opportunity for persons with disabilities in employment, State and local government services, public accommodations, commercial facilities, and transportation. It also mandates the establishment of TDD/telephone relay services.

Phone: (800) 514-0301


The mission of the Center for Disabilities Studies is to enhance the lives of individuals and families through education, prevention, service, and research related to disabilities.

Phone: (302) 831-6974


Community Legal Aid Society, Inc. (CLASI) helps provide equal access to justice, improving lives since 1946.  CLASI provides free legal services to people with disabilities, as Delaware’s Protection and Advocacy System, and older citizens (60 and over).

Phone: (302) 478-8850


Families Speaking Up is a non-partisan, grass roots group of people with intellectual and developmental disabilities (ID/DD), their families, friends, and caregivers.  We work to ensure that all voices are heard in the ID/DD debate.


Established in 1983, the Parent Information Center of Delaware (PIC) is a statewide non-profit organization with a mission to advance effective parent engagement in education.

Phone: (302) 999-7394


The mission of the State Council for Persons with Disabilities is to unite, in one Council, disability advocates and State agency policy makers to ensure that individuals with disabilities are empowered to become fully integrated within the community.

Phone: (302) 739-3620; (302) 739-3621